A: Introduction
- The purpose of this document is to provide clinicians and social workers guidance on the assessment of capacity. Its focus is on (a) how to apply the Mental Capacity Act 2005 (‘MCA 2005’) when assessing capacity; and (b) how to record assessment, primarily in the context of health and welfare decisions.
- This document cannot take the place of legal advice. In any case of doubt as to the principles or procedures to apply, it is always necessary to consult your legal department. In particular, if it appears that the person in question is subject to undue influence or coercion, it is always vital to consult your legal department as soon as possible to consider whether and how their interests are to be secured.
- The courts have now considered questions of capacity on many occasions, sometimes giving guidance as to how the MCA 2005 should be applied in general terms, and sometimes applying the MCA 2005 to particular factual scenarios. This guidance integrates key cases and also Mental Health and Justice (‘MHJ’) research drawing on the whole body of court experience. Clinicians and social workers have now over 15 years of experience considering questions of capacity under the MCA 2005. This guidance also integrates MHJ research which draws on this experience.
- Certain ‘flashpoints’ or ‘tensions’ have arisen in capacity assessment. Further guidance accompanying this main document identifies these and draws on interdisciplinary MHJ research to give practical assistance. See also here for further guidance on how to make proper use of tools which appear to measure a person’s ability to make decisions.
- Three notes on language:
- We use the initial ‘P’ to mean the person whose capacity is under consideration. Strictly, of course, P is not ‘P’ unless they are the subject of proceedings before the Court of Protection but we find it helpful to adopt this convention.
- The word ‘assessment’ is in our experience all too often used to cover two completely different things: (1) the process of assessing whether or not a person has capacity to make a decision; and (2) the recording of the conclusion reached as to whether or not the person had capacity. Documentations to record the outcome of capacity assessments should enable the person completing them to set out that the person has capacity if that is the outcome of the assessment.
- To save using the phrase “understand, retain, use and weigh” throughout the document, we use the shorthand “can P process” where we mean a situation where we are asking whether P can understand, retain, use and weigh the relevant information.
B: Key principles
- The core principles of the MCA 2005 are set out in s.1. They are:
- s.1(2): P must be assumed to have capacity unless it is established that he lacks capacity;
- s.1(3): P is not to be treated as unable to make a decision unless all practicable steps to help him to do so have been taken without success;
- s.1(4): P is not to be treated as unable to make a decision merely because he makes an unwise decision;
- s.1(5): an act done, or decision made, under this Act for or on behalf of a person who lacks capacity must be done, or made, in his best interests; and
- s.1(6): before the act is done, or the decision is made, regard must be had to whether the purpose for which it is needed can be as effectively achieved in a way that is less restrictive of the person’s rights and freedom of action.
The presumption of capacity
- The presumption that P has capacity is fundamental to the Act. It is important to remember that P has to ‘prove’ nothing:
- Outside the court setting, if you are going to take action in the name of P’s best interests, you will have to show why you have a reasonable belief that they lack capacity to make the decision(s) in question, and that you have taken reasonable steps to establish this (s.5(1));
- If you are in court, you will need to show the judge why – on the balance of probabilities – it is more likely than not that P lacks capacity to make the decision()s in question (s.2(4)).
- It is important to be aware that very act of deciding to carry out a formal capacity assessment is not, itself, neutral, and the assessment process can, itself, often be (and be seen to be) intrusive. You must always have grounds to consider that one is necessary to do at this time.
- Conversely, you must also be prepared to justify a decision not to carry out an assessment where, on its face, there appeared to be a proper reason to consider that the person could not take the relevant decision and there were best interests to consider:
- Whilst the presumption of capacity is a foundational principle, you should not hide behind it to avoid responsibility for a vulnerable individual. In our experience, this can happen most often in the context of self-neglect where it is unclear whether or not the person has capacity to make decisions.)
- If you have proper reason to think that the person may lack capacity to take a relevant decision, especially if the consequence of what they are wanting to do is likely to lead to serious consequences for them, it would be simply inadequate for you simply to record (for instance) “as there is a presumption of capacity, [X] decision was the person’s choice.” Indeed, the more serious the issue, the more one should document the risks that have been discussed with P and the reasons why it is considered that P is able and willing to take those risks. See further the flashpoint guidance on assessing capacity in a risky situation.
Thinking properly about the presumption
Useful guidance on how to think about the presumption can be found in this passage from the judgment in Royal Bank of Scotland Plc v AB:
The presumption of capacity is important; it ensures proper respect for personal autonomy by requiring any decision as to a lack of capacity to be based on evidence. Yet the section 1(2) presumption like any other, has logical limits. When there is good reason for cause for concern, where there is legitimate doubt as to capacity [to make the relevant decision], the presumption cannot be used to avoid taking responsibility for assessing and determining capacity. To do that would be to fail to respect personal autonomy in a different way.
- It is also important to remember that some people can ‘talk the talk, but not walk the walk’, or, in other words, can give a very strong appearance of ability to decide for themselves when in fact they are unable. This might happen, for example, if they have had numerous prior capacity assessments but there are also clinical contexts in which this can happen. There is more guidance about this here.
- Conversely, it is important to remember that some people don’t seem to be able to ‘walk, the walk’, when, in fact, they can. Taking practicable steps to ensure they can is essential (see also below on the causative nexus).
The support principle
- To comply with s.1(3) MCA 2005, you must take all practicable steps to help P before concluding that they are nevertheless unable to make a decision. And, importantly, consider why is it that you were unsuccessful in enabling P to decide despite those steps having been taken? This will include asking yourself – and being in a position to record – the answers to questions such as:
- What is the method of communication with which P is most familiar (is it, for instance, a pointing board, Makaton or visual aids)?
- What is the best time of day to discuss the decision in question with P?
- What is the best location to discuss the decision in question with P?
- If you do not know P, would it assist to have another person present who does (and, if they do, what role should they play)?
- Has P made clear (in whatever fashion) that there is someone that they would like to be present, or someone they would really like not to be present?
- What help does P require to learn about and understand the information relevant to the decision? For instance, does P need to be taken to see different residential options? Have you explained to P all the pieces of information that you have identified as being relevant to the decision?
- Is it possible to complete the assessment in one go, or is it necessary to come back and see P on more than one occasion, even if only to put P at their ease and help them engage with the process?
- And, perhaps above all, is there something that you can do which might mean that P would be able to make the decision? Depending upon the circumstances, this could be simply waiting: it is always important to be clear about how much time that you have before a conclusion has to be reached (and, if it does not seem enough, to see what could be done to buy more time). It could also be doing with P to assist them with the particular area of difficulty: see for a good example, Re DE [2013] EWHC 2562 (Fam), in which (whilst Court of Protection proceedings were ongoing), an intensive programme of education was provided to a learning disabled man, in consequence of which he gained the capacity to consent to sexual relations.
The ‘unwise decisions’ principle
- Different people will make different decisions because they give greater weight to some factors than to others, taking account of their own values and preferences. This principle emphasises that in assessing a person’s capacity what matters is the ability to make a decision, not the outcome of that decision. As the Court of Appeal has said:
… there is a space between an unwise decision and one which an individual does not have the mental capacity to take and … it is important to respect that space, and to ensure that it is preserved, for it is within that space that an individual’s autonomy operates.
- However, if a decision appears objectively to be unwise – in particular if it is out of character – it should be a trigger for considering whether the person has capacity to make it. Misplaced reliance should not be placed at that point on a ‘right’ to make unwise decisions: as the Supreme Court has made clear, it is only if the person has capacity to make the decision that they have such a right: see A Local Authority v JB [2021] UKSC 52 at paragraph 51).
Thinking about capacity – whose responsibility is it?
- Sometimes, people do not stop and think properly about who needs to think about the person’s capacity.
- In the courtroom setting, it is ultimately the judge’s decision as to whether or not the person has capacity to make the decision(s) in question. They have to do so on the balance of probability, after obtaining all the evidence that they consider necessary to be able to reach this conclusion.
- Outside the courtroom setting, i.e. in almost all circumstances in which this guidance will apply, the responsibility will lie on you if you are proposing to take the step in question on the basis that it is in P’s best interests. You will need to have to show that you:
- have taken reasonable steps to establish whether or the P has capacity to make the decision in question; and
- have a reasonable belief that P lacks capacity.
- That does not mean that you cannot seek expert assistance. But it does mean that that you cannot delegate the decision as to capacity to that expert.
‘Delegating’ decisions about capacity in the clinical setting
If you are a doctor proposing to carry out a particular operation, you cannot delegate to a psychiatrist colleague the decision whether or not the person has capacity. You may – and in some complex cases may need – to get expert input from that psychiatric colleague, but it is ultimately you, as the treating doctor, to decide whether or not P lacks capacity. If you did not reasonably believe P lacked capacity, and went ahead with the operation in what you thought was P’s best interests, you will have no defence under s.5 MCA 2005 to a claim for damages and/or criminal prosecution.
- The ‘reasonable belief’ also applies by extension to other people carrying out tasks under the MCA 2005 (for instance considering a person’s capacity for purposes of the Deprivation of Liberty Safeguards).
- It is important also to be clear that there are some situations in which the question is not whether the person lacks capacity so as to justify steps being taken in the name of their best interests, but whether the person has capacity, for instance to decline an intervention proposed by a doctor. See further the flashpoint guidance on assessing capacity in a risky situation.
C: What does it mean to lack capacity to make a decision?
- The law gives a very specific definition of what it means to lack capacity for purposes of the MCA 2005. It is a test that derives from interplay between the law, ethics and medicine, but is ultimately a legal test, which can be applied by anyone and for which the court is the final arbitrator.
- The test is set down s.2(1) MCA 2005, which provides that:
‘a person lacks capacity in relation to a matter if at the material time he is unable to make a decision for himself in relation to the matter because of an impairment of, or a disturbance in the functioning of, the mind or the brain’
Applying the capacity test
The Supreme Court in A Local Authority v JB [2021] UKSC 52 has made clear that you need to start by asking with whether the person can make the decision for themselves. Applying the Supreme Court’s approach makes clear that the test is best broken down into three questions you need to be able to answer:
- Is the person able to make the decision for themselves?
If there are legitimate doubts about this then,
- Is there an impairment or disturbance in the functioning of the person’s mind or brain?
And if there is an identified impairment or disturbance then,
- Is the person’s inability to make the decision because of the identified impairment or disturbance?
- We will look at each of these questions below but before we do so, need to emphasise some points where clarity is essential.
- First, capacity is decision-specific. The statement ‘P lacks capacity’ is, in law, meaningless. You must ask yourself “what is the actual decision in hand”? If you do not define this question with specific precision before you start undertaking the assessment, the exercise will be pointless. By way of example, where a person needs medical treatment to address gangrene in their leg, the decision in respect of which you need to assess capacity is whether they have the capacity to decide upon the operation proposed. It is not whether they have capacity to make a decision as to all of the potential operations that could be carried out to provide that treatment (the actual options need to be clear including the option of not doing what is proposed).
- Second, and linked to the first, as obvious as it may sound, it is also vitally important to ensure that, having framed the question with sufficient precision to yourself, you actually then ask P the question (in whatever manner is appropriate) during the assessment (and record the answer). If, unusually, it is not appropriate to ask the precise question, the reasons why it was not asked should be spelled out carefully.
- Third, before you can determine whether P is able or unable to make a decision, you must identify what the information relevant is to the particular decision in question. It is not necessary that P is able to process every element of what is being explained to them. What is important is that they can process the ‘salient factors’: the information relevant to the decision. This means that it is your job not just to identify the specific decision (as discussed above) but also what the information is that is relevant to that decision, and what the options are that P is to choose between.
The relevant information
The courts have now had over 15 years of experience considering different categories of decisions, and have identified the sorts of information that is likely to be relevant (and irrelevant) to decisions such as medical treatment, care, contact, residence, and accessing the internet and social media. The guidelines are set out in this guidance note written by 39 Essex Chambers.
In each case, however, it will be necessary to tailor the information to the particular situation of the person and the decision that they have to take. Some of the time, this may mean that there is more information that the person needs to be able to process than in the ‘ordinary’ case. Some of the time, there is something about the situation which means that things which ‘ordinarily’ would need to be processed simply do not form part of the equation.
- Fourth, the information that is relevant to the decision includes the reasonably foreseeable consequences of deciding one way or another, or failing to make the decision. In a situation where one course of action is much more dangerous for the person than the other, it is legitimate to probe whether the person can understand, retain, use and weigh the relative dangers of the two courses. This is why, although the courts approach questions of medical treatment on the basis that the question is whether the person can make the decision whether or not to have it, it is legitimate to probe (if relevant) P’s ability to process the fact that the medical professionals consider that refusing that treatment will lead to their death, but accepting it will save their life. See further the flashpoint on assessing capacity in risky situations for further guidance in relation to ‘high stakes’ situations.
(1): Is the person able to make a decision?
Breaking the test down
The law puts things in the negative: s.3(1) MCA 2005 states that P is unable to make a decision for himself if he is unable:
- to understand the information relevant to the decision; or
- to retain that information; or
- to use or weigh that information as part of the process of making the decision; or
- to communicate his decision (whether by talking, using sign language or any other means).
This does not mean that you should focus solely on the person’s apparent difficulties. Asking what they can do is important in terms of upholding the presumption of capacity, although it should not lead you to downplay appropriate probing as to whether or not the person is able to do the things in the list above.
- Starting with the question of whether the person is able to make the decision for themselves is important. If you start with the question of whether the person has an impairment or disturbance:
- (a) There is a danger that you will mentally ‘tick off’ the presence of an impairment or disturbance and then will not sufficiently question whether that impairment or disturbance is actually causing the inability to make the decision;
- (b) Linked to this, there is also a risk that the structuring perpetuates the discriminatory approach to those with mental disorders, as it essentially loading the capacity assessment against them by ‘pre-filling’ the first element of the test. In other words, it makes it – subconsciously – easier to move for you to move from thinking ‘this person has schizophrenia’ to concluding ‘this person lacks capacity to make [X] decision.’
- (c) Focusing on what it is thought that the person is functionally unable to do means that support can be targeted appropriately, for instance to help them understand the information relevant to the decision, or to use and weigh it. If, with that support, the person is able to make the decision, there is then no need to go further: they have capacity to make it.
- That having been said, depending upon the circumstances, it may be that more focus needs to be placed upon either the causal impairment or the functional test – for instance – if P is in a psychiatric ward with a clear diagnosis of a mental disorder, then it may be that more attention is required to considering whether that disorder means that they are unable to take the specific decision in question.
- In all cases, though, all three elements of the single test must be satisfied in order for a person properly to be said to lack capacity for purposes of the MCA 2005.
- Before looking at each of these elements in turn, it is important to unpick one consequence of the fact that the test contained in ss.2-3 MCA 2005 is a legal one which has to be applied in real life. The test contains very broadly defined functional abilities – for instance “to use” information. However, it is rarely enough simply to leave it that – either in terms of thinking about the person’s abilities or in recording your conclusions. Put another way, it is important always to be able to explain why a person’s particular difficulties mean that they do not have one (or more) of the functional abilities required of them by s.3 MCA 2005.
- In doing this, we suggest that it may be useful to draw upon the typology that was developed by the MHJ project. This typology illustrates how the Court of Protection judges (drawing upon the experts appearing before them, the other evidence they have had, and interpreting the language of the MCA 2005) have sought to explain why a person cannot do one or more of things required of them under the MCA 2005. The typology classifies these ‘explanatory rationales.’
- There are nine categories of ‘explanatory rationales’ in the typology, or nine types of decision-making problem used to explain whether a person is deemed to have or lack capacity for the specific decision. These are the ability or inability:
- (1) To grasp information
- (2) To remember
- (3) To imagine or abstract
- (4) To appreciate
- (5) To care or value
- (6) To think through a decision non-impulsively
- (7) To reason
- (8) To give coherent reasons
- (9) To express consistent preferences
- The typology serves two purposes:
- It will enable you to probe in more detail what the problem might appear to be, and – importantly – to provide the person with support to assist them with that problem area;
- When starting from the clinical phenomena, using these ‘explanatory rationales’ will (a) enable you to be more transparent and accountable in explaining your reasoning; (b) enable you to be confident that you are thinking in ways which are legally defensible. The MHJ team have, in a separate article, suggested that there are ways some of the explanatory rationales should be used and linked to particular functional abilities.
- The typology also suggests that there are certain types of decision-making problems that are more associated with particular conditions. This may be useful for alerting you to particular problems (and, in turn, particular ways of questioning or probing) associated with particular conditions. However we strongly caution against using it as a tool to single out people with particular conditions as automatically having those problems with decision-making.
- Taking the law and court practice as guidance, we look at each of the functional limbs of the test in turn, and explain how the typology may help in application.
Is P able to understand the relevant information?
- The courts have repeatedly emphasised that the level of understanding required must not be set too high.
- Further, you must not start with a ‘blank canvas.’ In other words, you must present the person you are assessing with detailed options so that their capacity to use and weigh those options can be fairly assessed. This is particularly important where a person’s particular impairment may make it more difficult for them to envisage abstract concepts. But it is also important to give the person sufficient information about the options that they are being asked to choose between that they are given the opportunity to understand (if they are capable of doing so) the reality of those options. In other words, and to take a common example, you should not simply seek to assess a person’s ability to decide between living at home and living in a care home in the abstract, but rather by reference to what continuing to live at home would be like (for instance, what care package would the relevant local authority provide) and what living in an actual care home would be like.
- The ability to understand also extends to understanding the reasonably foreseeable consequences of reaching a decision or failing to do so (s.3(4)).
- The inability to understand has been associated with specific explanatory rationales in the courts. See here for more detail.
Is P able to retain the relevant information?
- We repeat the need to be precise about the information in question.
- P needs to be able to retain enough information for a sufficient amount of time in order to make a decision. The Act specifies at s.3(3), however, that ‘the fact that a person is able to retain the information relevant to a decision for a short period only does not prevent him from being regarded as able to make the decision.’
- This is an important consideration, particularly when dealing with the elderly or those with deteriorating memories. Capacity is the assessment of the ability to make a decision ‘at the material time.’ If information can be retained long enough for P to be able to make the relevant decision at the relevant time, that is sufficient, even if P cannot then retain that information for any longer period.
- The inability to retain has been associated with specific explanatory rationales in the Courts. See here for more detail.
Is P able to use or weigh the relevant information?
- Again, it is necessary to be clear what the information is (and how it is said to be relevant to the decision). As with understanding, it is not necessary for a person to use and weigh every detail of the respective options available to them, merely the salient factors. Therefore, even though a person may be unable to use and weigh some information relevant to the decision in question, they may nonetheless be able to use and weigh other elements sufficiently to be able to make a capacitous decision.
- It is particularly important here to be aware of the dangers of equating an ‘irrational’ decision with the inability to make one – P may not agree with the advice of professionals, but that does not automatically mean that P lacks capacity to make a decision. For example, a religious belief in faith healing or a religious belief that blood products cannot be accepted as treatments will not necessarily be found to reflect inability to use or weigh health information due to an impairment of disturbance.
- Further, if a person is able to use and weigh the relevant information, the weight to be attached to that information in the decision making process is a matter for that person. This means you need to be very careful when assessing a person’s capacity to make sure – as far as possible – that you are not conflating the way in which they apply their own values and outlook (which may be very different to yours) with a functional inability to use and weigh information. This means that, as much as possible, you need as part of your assessment – your conversation with P as well as other sources of information – to glean an idea of their values and their life story as it relates to the decision in question.
- The inability to use and weigh has been associated with specific explanatory rationales in the courts. See here for more detail.
Is P able to communicate their decision?
- It is very important to understand how this limb of the test works. It presupposes that the person has been able to make a decision: in other words, that they have been able to understand, retain, use and weigh the relevant information – the problem is that they cannot communicate the decision that they have made. It is therefore a limb of the test which only applies to a very limited group of people, for instance those with locked-in syndrome who may, despite all practicable steps, be unable to communicate.
- If, therefore, you consider that the person is unable to understand, retain, use or weigh relevant information, but it is clear that they are seeking to communicate something, then:
- The record of your assessment should not say that they are unable to communicate their decision – it should say that they are unable to make a decision, and what they are communicating are wishes and feelings;
- You should take into account what they are communicating for purposes of constructing the best interests decision: see further the 39 Essex Chambers guide to this process here.
- See further here for the way in which this rationale has been considered by the courts.
- Any residual ability to communicate the decision is enough, so long as P can make themselves understood. This will be an area where it is particularly important to identify (and to demonstrate you have identified) what steps you should be taking to facilitate communication: for instance, reproducing as best as possible the manner by which they usually communicate, providing all necessary tools and aids, and enlisting the support of any relevant carers or friends who may assist with communication.
(2) Is there an impairment or disturbance in the functioning of the person’s mind or brain?
- An impairment or disturbance can include medical conditions causing confusion, drowsiness, concussion, and the symptoms of drug or alcohol abuse. It can be temporary or permanent (s.2(2)): if temporary, be careful to explain why it is that the decision cannot wait until the circumstances have changed before the decision is taken.
- Sometimes there will be no pre-existing medical evidence which helps you answer the questions whether P has an impairment or disturbance in the functioning of the mind or brain, and, if so, what precisely it is. If you are not, yourself, a medical practitioner, this does not always mean that you have to seek medical evidence at that point: depending on the circumstances, you may well be able to give a sufficient explanation as to what you consider the impairment or disturbance is which means that the person is unable to make their own decision. Some impairments or disturbances are sufficiently self-evident to mean that lay interpretations may be legitimate. Examples would include coma or acute confusional states in which the person is clearly thinking and behaving in a manner inconsistent with their baseline state (e.g. through delirium or intoxication with alcohol or drugs).
- However, the more serious the implications of the decision or the more complex the situation, the more likely that it is that you will need to consider whether you can appropriately say that you have a reasonable belief as to P’s decision-making capacity without medical evidence which can help you explain what the impairment or disturbance is.
- It is not necessary for the impairment or disturbance to fit neatly into one of the diagnoses in the ICD-11 or DSM-5. The important thing is that there is a proper basis upon which to consider that there is an impairment or disturbance. For example, coma is not in the DSM-5 and many of the diagnostic subdivisions and language of DSM-5 may be less relevant to capacity assessment. As a judge has put it, a formal diagnosis “may constitute powerful evidence informing the answer to the second cardinal element of the single test of capacity, namely whether any inability of [P] to make a decision in relation to the matter in issue is because of an impairment of, or a disturbance, in the functioning of the mind or brain” (North Bristol NHS Trust v R [2023] EWCOP 5.” However, it is entirely legitimate to reach such a conclusion in the absence either of a formal diagnosis or without being able to formulate precisely the underlying condition or conditions. To this extent, therefore, the term “diagnostic” test which is often used here is misleading.
- Particular care needs to be exercised if you are considering a person who appears to have a very mild learning disability or an unusual personality– this may well not be enough, in isolation, to constitute an impairment or disturbance of the mind or brain for these purposes.)
(3): Is the person’s inability to make the decision because of the impairment or disturbance in the functioning of their mind or brain?
- In all cases, it is important to be able to answer this third question – sometimes called identifying the ‘causative nexus.’ In other words, are you satisfied that the inability to make a decision is because of the impairment of the mind or brain? Any pro forma form for the assessment of capacity that does not include a final box asking precisely this question is likely to lead you astray.
The causative nexus in the courts
In PC and NC v City of York Council not being precise about the cause of the person’s difficulties made all the difference. The first judge who looked at the case considered that the woman, PC, lacked capacity to decide whether to resumed married life with her husband upon his release from prison because her inability to process the risks that he posed to her “significantly relate[d] to” her mild learning disability.
The Court of Appeal said that he was wrong to reach the conclusion that the woman lacked capacity. It made clear that the MCA requires the inability to be “because of” of the impairment, which is evidentially a more difficult test to satisfy.
- To reiterate, there has to be, and you have to show that you are satisfied why and how there is, a causal link between the disturbance or impairment and the inability to make the decision(s) in question. JB’s case, again, shows how easy it is to assume that merely because a person has schizophrenia, they are then unable to take decisions regarding surgical procedures – this is entirely incorrect. The disturbance or impairment in the functioning of the mind or brain must also not merely impair the person’s ability to make the decision, but render them unable to make the decision.
- To test whether you are satisfied that the ‘causative nexus’ is satisfied, you can ask one (or more) of these questions:
- The “plausibility” question: as whether it is clinically plausible that the inability is caused by the impairment or disturbance? For example, if someone does not appear to retain information is this plausibly explained by a personality disorder?
- The “subjective” question: ask “would the relevant decision be one P would have taken had they not had the impairment or disturbance”? For example, if someone was not in a delirium, or not in a severely depressed phase of affective disorder, would they be making this decision to refuse treatment?
- And always remember the ‘other explanation’ question: i.e. ‘is the inability better explained by a lack of practicable steps or by factors which are temporary (e.g. effect of medication, pain) which mean the decision can be delayed?’
- It does not matter if there appear to be more than one impairment or disturbance affecting the person, and it is not possible to identify precisely which appears to be making them unable to process the relevant information, so long as you can be satisfied that the reason is down to at least one of them (or more than one in combination).
- However, there will be situations in which it is not entirely easy to identify whether a person is unable to make what professionals consider to be their own decisions because of:
- An impairment or disturbance in the functioning of their mind or brain (for instance the effect of dementia);
- The influence of a third party (for instance an over-bearing family member); or
- A combination of the two.
- Examples of such cases include:
- The older patient on the hospital ward who looks to their child for affirmation of the ‘correctness’ of the answers that they give to hospital staff;
- A person with mild learning disability in a relationship with an individual who (even when that individual is not in earshot) is clearly still cautious about expressing any opinions that may go against what they think may be the wishes of that individual.
- This situation is addressed in more detail in this guidance.
D: Good capacity assessment and recording
- In almost all cases, the core of a capacity assessment is – or should be – a real conversation with the person on their own terms, which facilitates the person to apply their own value system to the decision at hand.
- It is important to understand that it is not only medical professionals – and in particular not only psychiatrists – who can carry out a capacity assessment. It is frequently the case that professionals or others who know the person better, and in particular who have seen the person over time, will be able to do a more robust capacity assessment than a person (of whatever discipline) ‘parachuted’ in for a snapshot assessment.
- Whoever you are – but especially if you are being ‘parachuted’ in – you need to do your homework and try to make sure that you are familiar with the situation. In other words, ensure you are familiar with P’s health problems, circumstances, incidents where risks have materialised etc. This is particularly important if you have been asked to consider someone’s capacity and you do not already know them, so do not have the advantage of having a sense of where the decision sits in the wider context of their life.
What makes a good capacity assessment?
A very good summary of what makes a good capacity assessment and, in turn, a good record of that assessment, can be found in this statement from a judge (although this relates to medical treatment, the principles are equally applicable to other contexts):
The fundamental principles of self-determination, freedom from non-consensual medical treatment and personal inviolability, and the equally fundamental principles behind the right to health, are most respected by capacity assessments that are criteria-focussed, evidence-based, person-centred and non-judgmental. Such assessments engage with the demand (or plea) of the person to be understood for who they are, free of pre-judgment and stereotype, in the context of a decision about their own body and private life. (emphasis added)
- A judge has helpfully summarised judicial expectations as to the recording of capacity assessments as follows: Given the number of capacity assessments that are required to be carried out on a dailybasis in multiple arenas, it would obviously be too onerous to require a highly detailed analysis in the document in which the capacity decision is recorded. However, a careful and succinct account of the formulation of the matter to be decided and the formulation of the relevant information in respect of that matter, together with a careful and concise account of how the relevant information was conveyed and with what result, would seem to me to be the minimum that is required (North Bristol NHS Trust v R [2023] EWCOP 5 at paragraph 65).
- In more detail, a good record of a capacity assessment that reaches the conclusion that a person lacks the capacity to make a specific decision will show that you have:
- Been clear about the capacity decision that is being assessed;
- Ensured P (and you) have the concrete details of the choices available (e.g. regarding treatment options; between living in a care home and living at home with a realistic package of care);
- Identified the salient and relevant details P needs to understand/comprehend (ignoring the peripheral and minor details);
- Balanced the protection imperative with the free choice imperative
- Demonstrated the efforts taken to promote P’s ability to decide and, if unsuccessful, explained why;
- Recognised that assessment is not necessarily a one-off matter, and that you have taken the time to undertake to gather as much evidence as is required to reach your conclusion – including, for instance, returning to have a further conversation with P or obtaining corroborative evidence;
- Been clear about why the relevant impairment/disturbance in the functioning in P’s mind or brain is causing them to be unable to make the decision;
- Answered the question: why is this an incapacitated decision as opposed to an unwise one?
- Verbatim notes of questions and answers can be particularly valuable in the record of the assessment, because they can allow the reader then to get a picture of the nature of the interaction and judge for themselves both the nature of the questions asked and of the responses received. This is especially important if the situation is one where your conclusion is finely-balanced: the closer to the line, the more the onus is on you to explain why you have a reasonable belief that the person has (or lacks) capacity to make the decision.
- If you are assessing a person’s capacity to make a number of different decisions, it is important to take a step back and ask before reaching a conclusion as to the person’s decision-making capacity in relation to each decision whether they all make sense logically together. This point was reinforced by the Court of Appeal in B v A Local Authority, in which it emphasised the danger of approaching decisions in ‘silos’ and reaching mutually incompatible conclusions.
- In addition to the specific points mentioned above, as with all documentation, the key general points to remember are:
- Contemporaneous documentation is infinitely preferable to retrospective recollection;
- Do not assert an opinion unless it is supported by a fact;
- “Yes/No” answers in any record are, in most cases, unlikely to be of assistance unless they are supported by a reason for the answer;
- What is reasonable to expect by way of documentation will depend upon the circumstances under which the assessment is conducted. An emergency assessment in an A&E setting of whether an acutely confused patient has the capacity to run out of the ward into a busy road will not demand the same level of detail in the assessment or the recording as an assessment of whether a 90 year old woman has the capacity to decide to continue living in her home of 50 years where the concerns relate to her declining abilities to self-care.
Flashpoints
- In this guidance document, we set out assistance in relation to a number of situations which been shown in practice to cause particular difficulties, either because thinking about capacity is having to take place in challenging circumstances or of because of the way in which the wording of the MCA 2005 appears to map onto the realities of practice.
A: Difficulty in engaging the person in the assessment
- A problem that can be encountered in practice is where it is difficult to engage the person in the process of assessment.
- It is important to distinguish between the situation where the person is unwilling to take part in the assessment, and the one where they are unable to take part. As Hayden J emphasised in Re QJ: “[i]t is important to emphasise that lack of capacity cannot be established merely by reference to a person’s condition or an aspect of his behaviour which might lead others to make unjustified assumptions about capacity (s.2(3) MCA). [In this case, a]n aspect of [the person’s] behaviour included his reluctance to answer certain questions. It should not be construed from this that he is unable to. There is a good deal of evidence which suggests that this is a choice.”
- However, you do not need mechanically to keep asking the person about each and every piece of relevant information if to do so would be obviously futile or even aggravating.
What you need to do is:
- To consider what steps could be taken to assist the person to engage in the process; and
- To record what steps were taken and what alternative strategies have been used.
- It is also important to think of ways in which you can persuade the person to take part, for instance by explaining to them that helping you – the assessor – is likely to help them, because it will maximise the chances that you will find that they are able to make the decisions.
Examples of creative solutions to problems with engagement
It is often helpful to liaise with others about what alternative strategies might help. Solutions in reported cases have included
- identifying whether the reason for non-engagement is embarrassment about particular issues and finding ways of assessing capacity which do not require confronting the person with the issue;and
- giving the person an element of choice as to who will carry out the assessment.
Remember that you could be the problem and that it may not be your fault: you could simply be the ‘wrong’ gender or from the wrong cultural background.
- If you think that the difficulty is because someone else is putting the person under pressure not to talk to you or engage with you, you may need to think about asking the High Court for help under its inherent jurisdiction. However, you should always remember that the Court of Protection can make an order requiring the person who is in the way to allow access where it has reason to believe that the individual in question may lack capacity.
- Ultimately, however, it is not possible to force a person to undergo a capacity assessment. You will therefore need to consider whether you have enough surrounding evidence to come to a reasonable belief that the person lacks capacity, if steps are going to be taken on the basis of s.5 MCA 2005. If the stakes are high, for the person or others, you may need to make an application to court to decide whether the person has or lacks the capacity to make the relevant decision.
B: Assessing capacity in a risky situation
- In some situations, assessing capacity seems to have very high stakes for all concerned. For instance, a person might not be willing to have a low-burden medical treatment which all the medical professionals involved consider will save their life. Or a person might be expressing a desire to want to keep living in a situation of self-neglect which social workers consider to be dangerous for them.
- In some situations, you may feel that the stakes are so high that the only appropriate course of action is to take the matter to court for a judge to reach the decision whether the person has or lacks the capacity to take the decision in question (and, if they do not, what should happen at that point).
- Outside the courtroom setting, there may be things you can do to reduce the risk. For instance, in some circumstances, you might simply be able to delay having to reach a conclusion about their decision-making capacity whilst providing them with support. You might also be able to propose another course of action – for instance a different medical treatment – which meets the concerns of everyone involved, but does not appear to provoke the same reaction on the part of the person.
Remember: capacity is not always the crucial issue
There are some situations where the person’s capacity is not, in fact, the determinative question. This is most obviously the case in relation to admission under the Mental Health Act 1983. Whilst the person’s capacity is relevant to the question of whether or not they could be admitted informally, if you are making decisions under the Mental Health Act 1983, you are ultimately having to ask themselves whether the person meets the criteria for admission (whether for assessment or treatment). These criteria are based upon mental disorder and risk, not decision-making capacity. If you consider that the person meets the criteria for admission under the MHA 1983, and (for whatever reason) the person appears not to wish to be admitted, then you should apply the criteria and process within the MHA 1983 without being distracted by questions of decision-making capacity.
Similarly, if the person is saying that they are at risk of suicide, asking whether or not they have capacity to take their own life is in many ways a red herring – the question, again, is one of risk. In the context of potential admission under the MHA 1983 it falls to be considered by reference to the criteria of the MHA 1983.
- However, if – for whatever reason – you need to reach a conclusion about the person’s capacity, then it is important to be clear that none of the principles in the Act mean that you have to ignore risk. You do need to be careful not to jump from the fact that a person is making a risky decision to the conclusion that the person lacks capacity to make it, and you cannot simply proceed to take decisions on a best interests basis because it seems like the right thing to do. But the courts have made clear that the European Convention on Human Rights imposes an obligation on public bodies not simply to accept at face value a person’s decision which puts them at risk if there is proper reason to think that they might not have the capacity to make it.
- How, then, to make sure that you do the right thing?
- In thinking about P’s capacity in this context, and for reasons explained in more detail in this paper here, you should proceed on the basis that:
- The more serious the consequences for P of the decision, the more rigorous the steps that will be expected of the assessor before the determination is reached whether or not the person has capacity;
- In asking whether P has capacity to make a decision which has particularly risky consequences for them, the information that they must be able to process includes those consequences. Section 3(4) MCA 2005 makes this clear.
- You can – and should – therefore test whether P can understand, retain, use and weigh the information that one course of action poses real risk to them, but another would (everyone else concerned considers) save their life, or otherwise be much safer. Testing in this way is not the same as confusing the outcome of the decision with their ability to make it, which the courts have made clear you cannot do. Rather, it is an important safeguard to ensure that whatever decision is reached is reached on a proper basis.
C: Fluctuating capacity
- Some people’s ability to make decisions fluctuates, or changes, because of the nature of a condition that they have. This fluctuation can take place either over a matter of weeks or months (for instance where a person has bipolar disorder with cycles of mania, depression or mixed states) or over the course of days (for instance a person with delirium with states of confusion that arise in association with, for example, severe infection) or over the day (for instance a person with dementia whose cognitive abilities are significantly less impaired at the start of the day than they are towards the end).
- Fluctuation of mental state does not entail fluctuating capacity – symptoms (e.g. mood and anxiety symptoms, symptoms associated with dementia) may be highly changeable without necessarily causing changes to a person’s ability to make decisions.
One-off decisions
- If it is a one-off decision, you may be able to delay taking the decision until the impact of the person’s condition upon their decision-making abilities has diminished. If it is not possible to put the decision off, then you should either take the minimum action necessary to ‘hold the ring’ pending the person regaining decision-making capacity or you should move to best interests decision making.
- At the point when mental capacity has been regained, you should record the person’s decision, and, at least in any case where there may be a challenge later to the decision on the basis that they lacked capacity, record why you consider that the person had capacity to make it. (grant of a will and grant of a power of attorney).)) Depending upon the context, you should also record the discussions held and what the person would want in the event that they lose capacity in future to make similar decisions. This means that, if further decisions then need to be taken in their best interests, they can be taken in knowledge of what they would want. The MHJ project has prepared detailed guidance about how to do advance care planning in the context of those with bipolar disorder, which is equally applicable to other situations where a person may have a condition which fluctuates.
Repeated decisions
- Some decisions are not one-off and need to be repeated over a period of time. Examples include the management of property and affairs, or the management of a physical or mental health condition which requires a multitude of ‘micro-decisions’ over the course of each day or week. Although capacity is time-specific, in such a case, it will usually be appropriate for you to take a broad view as to the ‘material time’ during which the person must be able to take the decisions in question. If the reality is that there are only limited periods during the course of each day or week that the person is able to take their own decisions, and the decision-making is not ‘macro’, then it will usually be appropriate for you to proceed on the basis that, in fact, they lack capacity to decide. This is particularly so where the consequences for the person are very serious if they are taken to have capacity when, in reality, this is only true for a very small part of the time and for some aspects of the decision making only. The courts have shown themselves increasingly willing to take this approach, or, closely-linked, the approach of ‘zooming out’ to ask themselves a macro-question if appropriate.
- If the approach taken here is adopted, you should keep the person’s decision-making ability under review, and reassess if it appears that the balance has tipped such that they have, rather than lack, capacity to take decision(s) more often than not and that the capacity to decide the appropriate macro-question is regained.
D: Executive functioning
- Another common area of difficulty is where a person – for example a person with an acquired brain injury – gives superficially coherent answers to questions, but it is clear from their actions that they are unable to carry into effect the intentions expressed in those answers. It may also be that there is evidence that they cannot bring to mind relevant information at the point when they might need to implement a decision that they have considered in the abstract. Both of these situations are frequently referred to under the heading of ‘executive dysfunction.’ Executive function has also been described by Cobb J as “the ability to think, act, and solve problems, including the functions of the brain which help us learn new information, remember and retrieve the information we’ve learned in the past, and use this information to solve problems of everyday life.”
- It can be difficult in such cases to identify whether the person in fact lacks capacity within the meaning of the MCA 2005, but key questions can be whether they appreciate (or have insight into) their own deficits and whether they are able to detach themselves from their impulses such that they can think through the decision when they need to. These types of inability can show themselves as a mismatch between an ability to grasp or respond to questions in the abstract and to act when faced by concrete situations. It is important to emphasise that if you do not carry out a sufficient detailed capacity assessment in such a situation – and, in particular, one which simply relies upon ‘self-reporting’ by the person – you run the risk of exposing the person to substantial risks.
E: Insight
F: Interpersonal influence
- In some cases, P may struggle to exercise their capacity due to external factors. We broadly refer to these factors as interpersonal influence. The MCA does not explicitly mention what to do when P’s relationships might affect their capacity. Nevertheless, as our research shows, relational issues frequently arise during capacity assessments and in the Court of Protection.
- Drawing on that research, we suggest the following guidance below, although we should emphasise that this is an area where the courts are still finding their way.
- A professional assessing capacity always be mindful of interpersonal influence. As most decisions take place in a social context, the distinction between support and influence can be unclear. Anyone can be subject to a degree of interpersonal influence for any decision, though in most cases, it is still legitimate to think of the person’s final decision as being in a real sense their own.
- If you suspect that P is being subjected to interpersonal influence which means that they are struggling to make their own decision, you should first of all take practicable steps to support P them to do so. Common practices include meeting independently with P and engaging with their wider support network, as well as other professionals. In some situations, family therapy might also be appropriate. Collecting collateral information about P’s longer-term situation may give some indication as to P’s “authentic” will and preferences, as separate from the picture given by the third party.
- As this research paper addresses in more detail, it is also important to understand that it is possible to ‘house’ relational factors within the test for capacity contained in the MCA 2005. In other words, there is case-law to support the proposition the assessment of capacity can take into account the interaction between the pressure that P is under and the impairment in the functioning of their mind or brain which makes it more difficult for them to understand, retain, use or weigh relevant information. For example, if P has an anxiety disorder that affects their ability to use or weigh, they might struggle even more because of a specific person who makes them feel more anxious. If the specific person is a sufficient fixture in their life that it is not realistic to imagine circumstances when P is away from their influence, it would potentially be legitimate to conclude that P is unable to make a decision whether to stay in contact with that person. However, any argument made on this basis should spell out, precisely, how the impairment and the interpersonal influence interact to cause the functional inability.
- There is no official guidance on how to do this. Our typology provides some indication of how these arguments have been submitted in court judgments. As this is early-stage research, we suggest that it is most helpful in terms of giving conceptual clarity. We have identified the following factors which it may be useful to explore when determining whether the real problem is the person’s impairment or the influence of an other (or others):
- P being unable to preserve their independence or free will due to influence
- P having had their perspective and future thinking restricted by the influence
- P being suggestible to the influence of others in a general sense
- P being vulnerable because they are extremely dependent on that specific relationship
- P rejecting facts about the alleged influencer that are relevant to the risk of them taking that decision, such as a previous conviction for sexual assault
- If your conclusion is that the person lacks capacity to make the decision in question, and you propose to take steps in the name of their best interests, it is particularly important to ask yourself whether those steps are designed to secure the person’s autonomy. It would be ethically wrong to use a more expansive approach to the causative nexus to make life easier for professionals.
- If your conclusion is that the person has capacity to make the decision in question, you cannot make a decision in the P’s best interests under the MCA. You may still provide support, but on the basis that you are engaging with a person who has capacity to accept or refuse that support. If you remain concerned that the person remains subject to interpersonal influence which puts them at undue risk, it may be necessary to consider taking steps under the inherent jurisdiction of the High Court. The inherent jurisdiction is outside the scope of this guidance, but is explained in this guidance note here.